Newsletter

There’s no better time to hit the trails and go hiking! Springtime brings natural plant growth and a sense of renewal and rejuvenation. Grab your hiking boots, or even your sneakers for a flat trail, and an active friend or family member. Then get ready to explore: Physical Health | Hiking promotes regular physical activity,…

Brandon Schrom is an inspiring hemophilia champion. His life story defies common misconceptions about living an active lifestyle with a bleeding disorder. Over the course of his life, Brandon explored new ways to live the exciting life he always wanted. Growing up, his parents were always concerned about his safety, especially given his passion for…

As a Revenue Cycle Operations Manager at Fidelis Specialty Pharmacy, Rianna White is proud to be part of an organization that serves the bleeding disorder community and Hispanic and Latino families around the clock: 24 hours a day, 365 days a year. “I have been in the industry for over 25 years, and what sets…

CBD oil has gained attention for its anti-inflammatory and pain-relieving properties offering help during bleeding episodes. While research on CBD oil is still new, we recommend that you ask your medical provider for their opinion and only buy from legal stores. Here are some benefits and considerations when using CBD oil. BENEFITS Pain Relief |…

Co-parenting isn’t just about splitting responsibilities; it’s about creating a nurturing, thriving environment. Your child’s well-being is the number-one priority. Maintaining an open line of communication is essential. It allows both parents to know what is going on with their child. It’s important to share the highs, the lows and everything in between. Communicating with…

Knowing what to do during emergencies is one critical aspect of managing bleeding disorders. Keep calm and remember the three D’s: disease, drug, dose. Clearly communicate with emergency staff about disease specifics. Use specific terms and concise language to explain the specific drugs you take and those you cannot take, ensuring that the right dose…

Winter can really affect how you feel, but there are great ways to brighten up your day!  Hanging out with your family and friends can be a great mood booster as well as strengthening your bonds. Exercising outdoors, even when it's chilly, perks up your mood and fights being tired. Catching some natural light or…

Visit Hemophilia.org for more information.  Are you inspired to make a difference in the bleeding disorder community? If so, the National Bleeding Disorders Foundation (NBDF) has an amazing opportunity just for you!  The National Youth Leadership Institute (NYLI) is a two-year program designed for individuals ages 18-24. Here, you'll grow into a fantastic leader, inspiring…

"Fidelis stands as a beacon within the Hemophilia community," says Douglas Lara, Client Relations Manager for Fidelis. "We are known for our unwavering commitment to serving the individual needs of our Hispanic and Latino families. Our approach is rooted in customizing services to specifically address your unique challenges and requirements.  What sets us apart is…

Bleeding Disorders Awareness Month (BDAM) is recognized every March by the National Hemophilia Foundation (NHF), Their focus is to raise awareness about inheritable blood and bleeding disorders like Hemophilia, von Willebrand disease, and rare bleeding disorders.  BDAM promotes its initiatives to policymakers, public authorities, scientists, and healthcare professionals. They emphasize the importance of early diagnosis…

Engaging in physical activities is important for those with bleeding disorders. Yoga is the perfect activity, it’s like a superhero booster for health! Active kids rock at life. They are less likely to gain weight and more likely to do well in school. They tend to earn more, spend less, and excel at work. Physical…

Let's face it — too many kids are spending too much time on computer and phone screens. This affects how much they exercise and their health. The Center for Disease Control (CDC) has found that spending more than two hours a day on screens can increase your blood pressure, cholesterol and weight.  Let's promote good…