From Hemaware.com
A joint bleed is the most common type of bleeding in people with hemophilia. Someone with severe hemophilia may have a joint bleed as often as two or three times a month. A mild hemophilia patient may only encounter the problem if they experience major trauma or surgery.
HOW A JOINT BLEED HAPPENS…
Alice Anderson, PT, DPT, PCS, a co-author of the National Hemophilia Foundation’s (NHF’s) Playing It Safe: Bleeding Disorders, Sports and Exercise guide recommends:
CHECK WITH YOUR HEMOPHILIA TREATMENT CENTER Do they recommend your child to be on prophylaxis? If your child has a problem joint, ask if there are specific sports that are safer. Also…
Learning that your child has a bleeding disorder can cause stress for many parents. You are worried about what life will look like for them and how to care for them.
So Hemaware.org asked parents for their best advice on what has helped them with their children’s bleeding disorders journey. Here is what one parent…
Use these simple exercises to ease your pain.
BY LISA FIELDS
Studies show that focused breathing can lessen chronic joint pain. It can also reduce anxiety about the infusion process and other stressors. Thinking differently about the pain and stress may also help people cope easier.
How to Practice Mindful Breathing To help reduce strong…
By Matt McMillen
A lot more goes on in your gut than most think. Trillions of microorganisms, including bacteria, viruses, fungi and parasites, call your belly home. When they live together in harmony in the microbiome, they help keep you healthy.
If the balance is good, the body will have fewer infections and illnesses. The…
EXCERPTS TAKEN FROM HEMAWARE.ORG
Hemophilia patients are no strangers to pain. Pain can vary in strength and areas of the body. Each moment of pain can give you clues about the possible cause and treatment options.
Listen to Your Body Everyone experiences pain differently. In fact, two-thirds of people with severe hemophilia experience pain in…
By Amy Lynn Smith
Helping others makes you feel good about yourself. No matter how old you are, you can make a difference.
When considering volunteering, ask yourself these questions:
Who do I want to help?
Do I want to help raise money for a good cause?
Could I help at an animal shelter?
What…